Mustering up enough energy for a wave hello.
Charlotte couldn't have anything by mouth for a few days to let her tummy heal, so we resorted to brushing her teeth to wet her mouth. She enjoyed it so much, we probably brushed the for about 15 minutes that day, just re-wetting her brush to moisten her mouth.
Grandpa Hawn taking a turn at entertaining Charlotte while we got away to get something to eat in the cafeteria.
Later that day, we felt Charlotte would benefit from some time out of her crib, so we took her for a wagon ride in the halls of the 10th floor.
Charlotte's right thumb is her comfort. We begged the anesthesiologists to start her IV anywhere but her right hand because when she had her heart surgery, she had an IV in that hand and was sucking on the port of the tubing! Thankfully, they were able to put her IV in her foot so that she could soothe herself better. What a difference it makes.
The next day we took Charlotte on another wagon ride, but since it was so nice outside, we went to the rooftop garden on the 8th floor. It was so nice to get outside for a little bit and Charlotte seemed to enjoy it as much as we did. She was so relaxed when in the wagon.
Finally, a picture of Charlotte's tube. This is not permanent, when they are able, they will switch her over to a "button". We have to change her bandages every 3 days, and mostly what seems to hurt her is the tape coming off :( But, she doesn't play with it too much, we even gave her a bath (with very little water in the tub as we can't submerge the tube site yet) last night, and she didn't even bother the tube, she was too excited to play in the water. Sometimes she plays or tugs it a little, but not too bad. We just try to tuck it in her diaper so it doesn't get pulled and tuck it into her clothes too. The tube has 3 ports on it, one for her feedings, one for medications, and one for the balloon on the other end of the tip so that it doesn't get pulled out. Charlotte can still eat by mouth, but since the amount of food that she is getting in the tube is more than she would ever eat, she hasn't been that interested. So, we aren't going to push her yet, especially since she is being fed nearly round the clock right now. Today, we are decreasing the feeding time down to 20 hours. So, she will not be "hooked up" between 4PM today and 8PM. We will hook her back up right before bed. Last night, she was unhooked from 6PM - 8PM. So, each day, that time will lengthen, which also means the rate of her feeds must increase. So as we increase the rate, we are hoping she can handle the food. No vomiting yet, but she has been refluxing some, and also is now having terrible diarrhea...sorry TMI. I hope this doesn't mean we are having problems, I am still waiting to hear from her GI Dr. about that.
We also relied on the t.v. for entertainment in the hospital, a habit we do not wish to start, but desperate times called for desperate measures. We bought a Mickey Mouse DVD since he is her favorite. I think Chris and I know all of the words to that movie now. We were also given some movies by a few friends to borrow, but Elmo, Big Bird and Spot just didn't hold a candle to Mickey Mouse or Baby Einstein.
I am not sure what Charlotte was doint in this picture, but I thought the twinkle in her eyes was cute.