I am compelled to write this post. I have learned of at least 3 families in the past month who have been recently diagnosed with this disease. Ryan's birthday is this month. I can relive many events in his life as if they were yesterday. He is on my mind each day, and with every new family that I hear about that is struggling with this disease, my heart aches for all of the hardship that I know is in their future.
SMA is real. It is the disease that no one knows about, no one believes can happen to them, and no one wants to happen to their children. If you have a family history, please take time to learn about testing for yourself, or your children. I am reminded much too often that this disease is affecting families all the time, and I feel it is my duty, on behalf of Ryan, to encourage others to at the very least, be informed. Please visit www.fmsa.org or www.mda.org for more information. Also, please feel free to contact me via email with any questions. firstname.lastname@example.org
Friday, December 30, 2011
Striking a pose before we leave home for her first dance recital.
Here are pictures from Charlotte's first dance recital ever! She is the second from the left. They danced to "Santa Baby".
At the end of the show Santa came on stage with all the kids. When Charlotte set eyes on him...she got so excited she hugged the girl next to her and you could hear her scream with joy. She then tried her best to get to the front of the crowd to give him a hug.
Here is our little dancer with her flowers from Mom & Dad and Grandma & Grandpa Hawn.
Charlotte and her cousins.
We are so proud of you Charlotte and look forward to you dancing in many more recitals in the future!