I have become aware of a bill currently in Congress to help find a cure for SMA and fund research. This link will take you to the full text of the bill http://www.opencongress.org/bill/111-s1158/text . I have created a petition as a link on our blog and am URGING you to PLEASE sign this petition and pass our link on to everyone you know to sign also. When we reach our goal of 100,000 signatures, I will send the petition to Congress so they can see how important this bill is to so many people.
When Ryan was first diagnosed with SMA, I thought it was a rare disease that didn't effect many children. Since, I have discovered hundreds of families, devastated by the disease. I have been brought to tears more times than I can count by the stories of others. Please, help us fight for these families and children. Help find a cure for SMA.
Jennife Hawn
1 comment:
Have you checked out the Petition to Cure SMA (http://www.petitiontocuresma.com) which has already collected more than 65,000 signatures in support of the SMA Treatment Acceleration Act?
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