They did not find any indication that Charlotte has Eosinophilic Esophagitis, which is a good thing. At times, I find myself wishing they would find something that explains her struggles, but it must just be that her gastric emptying delay effects her that much. We have continued on the Reglan, and will continue her Prevacid for reflux as well. We also will be keeping a close watch on her blood pressure while in the hospital to determine if it is in the correct range or if her medication needs to be increased one final time. Hopefully, we can keep it where it is at. Chris and I get up at 2AM every night to give it to her because it has to be given every 6 hours, so hopefully, if they don't have to increase her dose, they can switch her to a medicine that only has to be given every 12 hours. A full nights sleep would be much appreciated in our house, as when I get up, I find it difficult to go back to sleep with everything on my mind.
A big thanks to everyone keeping our family in your prayers, know that we appreciate them all so much. We will let everyone know how the surgery goes as soon as we can. Here are some pictures from this past week.
Playing downstairs in the basement with all of her other great toys. I think she forgets that she has them until we go down there again because she gets really excited.
Emptying Noah's Ark
We hope you all have a great week. I wish I could share more with you what we are feeling about this surgery, but honestly, my mind changes everyday. I know she needs it, but any time she gives me one little bit of hope, I try to talk myself out of it because I am dreading doing this. I know she needs help, I just wish what I could give was enough. I am scared that we are going to have more complications ahead, but in my heart, I believe that God will show us the way and that he will teach us how to help her more each day and will help us give her the strength she needs to grow and develop. He knows that is my daily prayer.