tag:blogger.com,1999:blog-1900113821323304485.post2387918196859216805..comments2023-10-10T05:43:50.862-05:00Comments on The Hawn Family Weekly: The Spin CycleJennifer Hawnhttp://www.blogger.com/profile/11364462082355767102noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-1900113821323304485.post-67783800723787242072009-07-17T12:09:21.043-05:002009-07-17T12:09:21.043-05:00I followed you over from Danielle's site. I w...I followed you over from Danielle's site. I wanted you to know that I am thinking about and praying for your family and Ryan. I wish I had 8 people to do the trivia night (I see there is an open table) but I just don't. I signed the petition and am following. Best wishes from St Charles.Stefanyhttps://www.blogger.com/profile/17792623466271126742noreply@blogger.comtag:blogger.com,1999:blog-1900113821323304485.post-80815403812132136502009-07-16T21:34:22.670-05:002009-07-16T21:34:22.670-05:00Hi Hawn Family, Amy McLean sent me the link to you...Hi Hawn Family, Amy McLean sent me the link to your site. My son gets services thru Wings right now too. He has a rare syndrome without a name that causes his brain to shrink and therefore is systemic, discovered at 6 mos old. Hayden is fed TPN & Lipids via a central line thru a broviac cath in his chest. Hayden is a quadruplet, they are 3 years old. I recognize your feelings about what Ryan should be doing for a typical baby, we're mostly past that now or maybe we've been too busy with three wild monkey children and one medically fragile. Anyway I admire that you are able to take on the cause for SMA and becoming such a strong advocate. Ryan is such a beautiful baby and those eyes show the fight that he has. It's amazing how differently life looks when you see your child struggle everyday. I should also let you know that if Ryan qualifies for respite care thru the regional center for developmental delay, we have found a really great nurse to provide respite. I'd be happy to share her info, she also works for nurses2go. <br />The Barnes Family<br />www.caringbridge.org/visit/haydenbarnesbarnesquadshttps://www.blogger.com/profile/15830761028505344616noreply@blogger.comtag:blogger.com,1999:blog-1900113821323304485.post-1121671598691602002009-07-16T02:13:14.871-05:002009-07-16T02:13:14.871-05:00Hello. I learned of your family watching Spin Cycl...Hello. I learned of your family watching Spin Cycle. I just want to stop by and leave you lots of strength, love, hugs and Prayers. Your family is so beautiful. I wish there were something I could do or say that would help.<br /><br />I will offer the assistance of Spirit Jump. It's an organization that strives to "Brighten the Days" of children, women and men who have cancer and other debilitating diseases, by sending cards and gifts.<br />www.spiritjump.org<br />Bless your family and may God watch over you and guide you through this trial.Lagean Ellishttps://www.blogger.com/profile/10339501466903179629noreply@blogger.comtag:blogger.com,1999:blog-1900113821323304485.post-22081832859339489212009-07-16T01:58:26.822-05:002009-07-16T01:58:26.822-05:00The very idea that you are thanking ME.....I am gr...The very idea that you are thanking ME.....I am grateful to you for bringing the joy of your family into my life.<br /><br />I am thrilled to be MCing on Saturday. I loved talking about you and Ryan tonight.<br /><br />Here are the links to the two posts:<br /><br />http://momitforward.com/mom-fights-for-her-son-fights-for-a-cure<br /><br />http://www.extraordinarymommy.com/blog/uncategorized/do-it-for-ryan/<br /><br />Hugs. Lots of them.<br /><br />DanielleExtraordinaryMommyhttps://www.blogger.com/profile/18227280678269543878noreply@blogger.comtag:blogger.com,1999:blog-1900113821323304485.post-15378810606187222962009-07-16T01:57:36.922-05:002009-07-16T01:57:36.922-05:00Hi Hawn Fam. I happened to catch one of Danielle&...Hi Hawn Fam. I happened to catch one of Danielle's tweets and found your site through ExtraordinaryMommy. Ryan is absolutely gorgeous. He's got the same deep, intelligent, bright eyes that one of my boy's does. It's almost as if they can look at you and you know they know more than you do. I'm not sure what else to say aside from you'll be in my prayers and the old, "If you ever need anything..." Which, if you do, I'd do anything I could. Thanks for putting your story out there! Important causes always need voices.Sarah @ Queen Mommyhttp://queenmommyblog.comnoreply@blogger.com